Waldy Myelo & Me - Surviving Waldenstrom's Macroglobulinemia & Myelodysplastic Syndrome
Carol Turner
Publisher: Advantage Media Group
Summary
Prepare to meet Waldy, Dr. Turner’s pet name for Waldenstrom’s Macroglobulinemia.Then, just as it seems like the shock is clearing, his pal, Myelo—Myelodysplastic Syndrome—enters the scene. In the process of fighting them off, we’ll also meet enough doctors and varied care providers to fill a small bus: Dr. Blood Expert, Dr. Know It All, Ms. Smooth-as-Silk Social Worker, Dr. Second Cancer, Dr. Gatekeeper, Dr. Good Ideas, Dr. Italian, Dr. Believer, and more. Some work miracles, while one caused our protagonist to storm out of their office in disgust. Much of what’s in these pages is about self-advocacy. As a doctor herself, Dr. Turner is less intimidated than most by going toe-to-toe with care providers and taking her care into her own hands, whether with doctors, nurses, or administrative personnel. Though she’s a doctor, and her words are medically accurate, her writing is squarely intended for regular people—as are the lessons it conveys.