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A Parents’ Guide to PANDAS PANS and Related Neuroimmune Disorders - Information Support and Advice - cover

A Parents’ Guide to PANDAS PANS and Related Neuroimmune Disorders - Information Support and Advice

Patricia Rice Doran, Diana Pohlman, Heather Rain Mazen Korbmacher, Christine Leininger Amabile, Tiffany Tumminaro

Publisher: Jessica Kingsley Publishers

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Summary

Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings. 
The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.

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